by Bontle Moka

Hey, Qraters!

Remember the stress you had to deal with at school when they started introducing the alphabet and Greek into mathematics while navigating all the things you were probably experiencing for the first time, like a crush, your first party, or breakouts on your face? Imagine dealing with all that AND the stress of a doctor telling you one day that you might need to fall pregnant as a teenager because you could be faced with a condition that could lead to infertility in the future and that you need to do so before your 21st birthday. It sounds like a Disney princess born with a curse, doesn’t it? 

Well, dealing with the Pythagoras Theory wasn’t exciting at all, but dealing with painful periods as a young girl was a nightmare and did feel like a curse put on me by some evil wicked witch, at least in hindsight, because at the time I thought it was completely normal and that it was everyone else’s experience. It turns out, almost 15 years after my first period, it was the beginning of a journey of dealing with endometriosis. 

As a parent, hearing a doctor tell your teenager that pregnancy might be a cure or solution to painful periods or potential future infertility is not easy. It seems straightforward to simply walk away and dismiss the doctor, but what happens if the doctor is right about the symptoms that eventually could lead to infertility in the future and does? Knowing what to do before it even gets that far can help so many young menstruators, and knowing what to look out for can make a huge difference and hopefully help get an early diagnosis and treatment, or possibly prevent it altogether. 

For those that don’t know, “Endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus.” It is a whole-body disease that affects over 190 million people worldwide, and some of the symptoms include painful, heavy periods, severe bloating, nausea, fatigue, back, leg, and knee pain, and painful sex, which can lead to infertility. However, as a young girl, one is still getting to know one’s own body, and when you’re told “period equals pain,” you kind of just go with it. At times, you may tolerate more pain than normal, and although pain is common, it is not normal. 

I remember sharing with friends at times that I dealt with painful periods, but I knew something was quite off because I started my period quite young, and through the years I had seen doctors so frequently, all related to the same thing, something to do with my cycle. It was a painful, tiring, EXPENSIVE experience. Although I found healing through homeopathic remedies, changes in diet and nutrition, various pain medications, and a strengthened walk with God, it is still an uphill battle, and I am still on a healing journey as I still struggle with pain, infertility, and some of the unseen symptoms of this condition. 

Now, while some period pain and discomfort are normal, it’s important to recognize when your body might be signalling something more. Here’s a quick guide on what to look out for: 

• Chronic Pelvic Pain with consistent pain that extends beyond menstruation and occurs at other times of the month 
• Severe and prolonged pain that disrupts daily activities 
• Heavy bleeding that requires frequent changes of sanitary products
• Gastrointestinal Issues such as bloating, constipation, or diarrhoea
• Fatigue that causes unexplained tiredness that persists throughout the menstrual cycle and beyond
• Any Dizziness, Nausea, or Vomiting 
• Family History can also play a role, along with the symptoms 

It might seem obvious to look out for symptoms that you can easily see, such as a painful period or heavy bleeding, because you might be curled up in a ball during that time, and if not, you might seem cranky because you still have to show up for that math class you’ve probably been dreading, but now you’re worried about the pain, or will there be a leak? Will the painkillers help? All that and managing the hormonal imbalances that you’re not even sure how to deal with yet. However, there is so much more to look out for than what’s on the surface, which is why endometriosis is known as one of the most painful ‘invisible illnesses’, which many consider a disability because of how crippling it can be. The impact is more than just physical, it can cause depression, anxiety, brain fog and so much more, which requires patience, a good support system, encouraging open conversations, and advocating for further investigations such as pelvic exams, ultrasounds, or laparoscopic procedures.

Early intervention and medical attention are crucial for managing endometriosis effectively. Remember to always keep a detailed account of symptoms; consult a healthcare professional; but don’t rush with treatment options; always get a second and maybe third opinion if you and normalise conversations about your period with friends, family, at home, and school, in different spaces to reduce stigma and create safe spaces for discussions that could help many young menstruaters get the help they need and avoid a long journey or dealing with chronic pain as adults. 

Written by Bontle Moka.

Bontle Moka is an Endometriosis Advocate and founder of Endometriosis South Africa. Follow her for insights and personal experiences. Explore her journey and gain valuable perspectives.